International Rett Syndrome Foundation
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Patient AdvocacyDescription
Cincinnati, OH 45242
The International Rett Syndrome Foundation (IRSF) works to advance research and development targeted to create a cure for Rett syndrome. The IRSF funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services for family and care givers. The IRSF also advocates for and raises awareness about individuals with Rett syndrome so the scientific and medical community, policy makers, educators, care givers, and the general public can more thoroughly know, understand, and be motivated to help the research efforts and individuals dealing with Rett syndrome on a daily basis. Since 1998 the IRSF has awarded over $15MM in direct support of research grants towards innovative basic and preclinical research. These grants are primarily focused on understanding the mechanisms that contribute to Rett syndrome and its associated complications.
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