Member Directory

The LAM Foundation urgently seeks safe and effective treatments, and ultimately a cure, for lymphangioleiomyomatosis (LAM) through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support. The LAM Foundation is the global leader in the fight against lymphangioleiomyomatosis (LAM). Founded in 1995 as a grass roots effort, The LAM Foundation has evolved into an organization that is described by the National Heart, Lung and Blood Institute (NHLBI) as “a model for voluntary health agencies.” Headquartered in Cincinnati, Ohio, The LAM Foundation provides support and education for women with LAM and their families, engages doctors and scientists to continue to learn more about the disease and raises funds for the continued study of LAM. The Foundation has raised and invested more than $25 million in research over the last 23 years, resulting in the fundamental understanding of the genetic cause of LAM which led to the first ever clinical treatment trial and ultimately an FDA approved treatment for the disease. More than 2,000 women with LAM have been identified to date but it’s suspected that there may be as many as 250,000 undiagnosed or misdiagnosed living with LAM. The LAM Foundation strives to provide hope for all women with LAM by providing a network of support and continued research to ultimately find a cure for LAM.